Blog

Filling the Gap | God’s Not Done

July 30th, 2019 | Based on @chronic_whispers Instagram Post

There are times when I am SO over my health issues I just want to give up. Being chronically ill for years does that to a person. But, God isn’t done with me yet. I have a handful of people who know the depth of my struggle and pray healing for me regularly. I can’t give up.

So what do you do when you don’t have any answers – when the doctors don’t have any answers? You do what millions around the world do in this situation – you become your own medical team. You do the research and become the expert. You try supplement after supplement trying to find the right combination to make a real difference. You try alternative options. You take chances and then hope and pray SOMETHING will make a difference.

I have researched for years. I have tried different things. I have been laughed at, scoffed at, ignored, and dismissed by doctors. I have fired doctors and tried again. Only tiny steps have been made in my journey to healing and yet sometimes it still seems I’m getting worse. But, that doesn’t mean I’m going to stop trying. So, I’m taking another chance with yet another product and praying that, with all the prayers surrounding me, that this one might be my answer. Some of my research leads me to think it has a shot, so I feel a bit of hope. But, then again, I’ve had that hope before. Regardless, please pray that this time will be different. That this time I will see some real impact on my daily existence. Thank you!

Filling the Gap | 4 Years & Counting…

July 27th, 2019 | Based on @chronic_whispers Instagram Post

My last good / “normal” day was 4 years ago.

There is “that one day” I always refer to when I discuss the last time I remember feeling “normal.” I had been ill for a few years already, so it was post-worthy. Today Facebook memories reminded me of that day and I was shocked to realize it was 4 YEARS ago. I knew it had been a long time ago, but seeing it in black and white hits me differently.

I had been sick that week with a cold or something. But, I was pretty much over it – just extra fatigued. So I had been sleeping a lot trying to recover. I had slept for about 22 hours straight before waking up and feeling…nothing. No pain. No fatigue. No brain fog. No weakness. Nothing.

WHAT? It was SO weird. I had forgotten what “normal” felt like. It felt so foreign and so right at the same time. I was scared to say it out loud, but after getting up and ready and still feeling the same, I got excited. These two posts were a result of that miracle of a day.


However, there was not a third post for a reason. Shortly after lunch I felt it. This miracle was wearing off. I started praying. “No, please no!” I remember begging. I was on the edge of tears as I began to feel the fatigue creep in. As I felt the fog float in. As I felt discomfort start to grow in my body. By that night I had fully returned to MY normal.

I have no clue how it happened. I just pray that one day I can experience the “nothing” of that day again. I pray that whether God grants me that miracle this side of Heaven or not, that I will find my strength in Him – that He will be glorified in the life I live. He is good and I trust His heart for me.

Filling the Gap | Bucket List Experience

July 5th, 2019 | Based on @chronic_whispers Instagram Post

I am a baseball lover. It’s my sport. I started playing softball at the age of 4 and played competitively until I went to college. I was a pitcher and I was a natural. It was a passion. But after I quit playing softball, baseball took over as my first love. I watch way too many games on TV and I am peaceful & excited – in my “happy place” – when at a game.

Part of many baseball fan’s bucket list is the Louisville Slugger Museum. Well, its on my Bucket List anyway. And, today I got to visit! I got to put a big ‘ol check on one of my bucket list items!

Thanks to my brother, I got to see the displays, go on the factory tour, and take silly pictures. Thanks to my brother and a wheelchair.

Speaking of that wheelchair, another first happened today. Below is the FIRST picture of me actually in a wheelchair.

I’ve used motorized shopping carts for almost 2 years – when available – and spent the majority of my family vacation last August in this chair. (A lot of walking is involved.) I rarely use it other than those specific times, but I knew I couldn’t survive nor enjoy my bucket list experience without it. So, while its something I never expected for myself this early in life – and part of me is crushed by it – I am thankful that it allowed me the freedom to go live life and experience one of my Bucket List items!

Cheers to these two wheels and my brother (pictured with me and Babe Ruth) for making this possible!

Filling the Gap | Intro

December 28th, 2019

Hello, blog world! I have been absent from my blog for quite some time. Only a couple of posts this entire year! However, I have some that I could have posted, but limited to a short entry on Instagram. I’d like to have some of those here – ya know, for “posterity’s sake,” so I’m going to fill the gap with a few blog entries from there. They will all contain “Filling the Gap” in the title so you can easily identify them.

Existing is Exhausting

If you have seen any of my posts on Instagram @chronic_whipsers, you will have seen #existingisexhausting at the bottom of almost every one.

It is a personal hashtag that I feel defines my journey with chronic illness over the past 8 years. But now it is also the theme of my t-shirt fundraiser.

I know if you are reading this, there is a good chance that you share in the sentiment of that phrase, but also in the financial struggles that come with a chronic illness. So, if you cannot purchase a shirt, I completely understand.

However, if you like the shirt, I’d love for you to have one! If you are one of my international friends, they DO ship to many countries outside of the US. Campaign will close October 31st.

Please click here to select a color, size, and purchase!

More than Anything

I know if You wanted to You could wave Your hand
Spare me this heartache and change Your plan
And I know any second You could take my pain away
But even if You don’t I pray

Help me want the Healer more than the healing
Help me want the Savior more than the saving
Help me want the Giver more than the giving
Help me want You Jesus more than anything

You know more than anyone that my flesh is weak
And You know I’d give anything for a remedy
And I’ll ask a thousand more times to set me free today
Oh but even if You don’t I pray

Help me want the Healer more than the healing
Help me want the Savior more than the saving
Help me want the Giver more than the giving
Oh Help me want You Jesus more than anything

When I’m desperate and my hearts overcome
All that I need You’ve already done
When I’m desperate and my hearts overcome
All that I need You’ve already done

Oh Jesus Help me want You more than anything

Help me want the Healer more than the healing
Help me want the Savior more than the saving
Help me want the Giver more than the giving
Help me want You Jesus more than anything
Help me want You Jesus more than anything

“More than Anything” | Natalie Grant


My flesh and my heart may fail, but God is the strength of my heart and my portion forever. – Psalm 73:26

Seeking the Shift

I wrote this about five days ago during a night of painsomnia…

When you want change in your life…when you are desperate to escape existing in the everyday drudgery that has become your life…when you reach this point it is not necessarily because your life sucks. But, maybe it does. Maybe you have overwhelming pain in your body or heart, a job you hate (or none at all), feel unloved & misunderstood, or on the borders of anxiety or worse. On the other end, maybe you have a great life with a happy family, job, income, and activities you enjoy. But, you are also time broke or feel a gnawing for something more. You wonder if even the smallest of shifts in the direction of your life could open the door to a better view of the beauty in the world around you. More beauty, more love, more fun, more freedom.

It’s funny how I suspect different people are reading different things into this message. For me, I started it with one thing in mind, but feel it could really be applicable to a minimum of three different areas of my life. Regardless, I’ll stick to the one I started with for now.

Too many days I’m in the first category, feeling like my life sucks. I struggle daily with deep physical pain and fatigue that provokes emotional and mental distress. I regularly feel forgotten, misunderstood, stuck, and without the freedom to live the life I desire to live the way I want to live it. My physical body has me trapped in a glass box nobody can see. One wrong move and that box may crack. Maybe that crack is even too small for anyone else to see, but it reverberates throughout the rest of the box. Maybe it’s a nice, big crack…big enough at least for others to say, “what’s that?!” They look at you cross-eyed and your secret is out…there is something wrong with you. Even strangers take notice and assume the right to judge. You are no longer the same person you once were. It could take one minuscule fracture or one huge impact, but you walk around knowing that at any given second the glass box will shatter, come chasing down, and you will disappear with it. Whether for a few hours or a few weeks, you disappear into recovery, picking up all the broken pieces and trying to find the clearest of packing tape to rebuild the facade. And sadly, most times nobody even notices, or, they notice too much.

So yes, I fight and battle through intense ruts wondering what it will take to shift things just enough to see that door open…to experience more freedom, more beauty, more good days filled with love and laughter instead of pain and fatigue. In this situation, as in the others, it requires a willingness to open your mind. You have to be humble enough to take a moment to learn something new; to listen to someone who has an idea you haven’t truly listened to before because of your preconceived opinions or just general lack of interest or willingness to hear them out. When you take the time to actually listen and learn from someone who has experienced a shift for themselves, you may be surprised at what happens next. It just might be possible that the shift is nothing like you imagined. It could be just what you need and never realized because you judged too quickly. But even if it’s not the answer, not the shift that points you in the right direction for you, at least you know. You know where to put up a road sign along your journey. You can walk away more educated, one step closer to your shift, and with a resource for someone else who might need you to share that information with them.

So, I don’t really see a negative. Sure, taking the effort to try one thing after another until you find the answer can be exhausting. Trust me, I know…traditional prescription medications, supplements, test after test…I’m still seeking what will provide my desired shift. But if I can find the key to a life with more freedom, fun, beauty, and love…well, isn’t it worth it?

My one word for this year is HOPE. I have to believe that my answer is out there and that when I find it, it will be worth it. Which is why after months of reading articles, talking to friends and strangers with experience, and just educating myself out of my own preconceived opinions and judgments, I am taking a chance on an idea. I’m excited to see if it will be the shift I need or if it will simply be an educational experience I can share with others later. Either way, I’m no longer ignorant on the subject and will either be able to pursue it if it proves successful for me or put out the road sign. So, here’s to the start of my journey with CBD and finding the right strain, dosage, etc that will bring life back to this broken and struggling body of mine. Here’s praying and placing my hope in Him to turn my world upside down!

Starting low

May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit.
 Romans 15:13

Welcome to Chronic Whispers

Welcome to my new page, Chronic Whispers. This is a place for me to capture my thoughts and journey through chronic illness, as well as educate others about chronic illness. Hopefully, somewhere along the way I can encourage, challenge, or inspire someone else. Here is a little bit about why I chose “Chronic Whispers” as my name.

“Chronic” refers to the time-frame. It is defined by Merriam-Webster as “continuing or occurring again and again for a long time” and “always present or encountered – especially : constantly vexing, weakening, or troubling.” This is a key descriptor of chronic illness that many people miss. They know someone with CHRONIC illness and yet still ask, “are you STILL sick?!” Yes, yes I am.

“Whispers” refers to two different things. (1) The sneaky ways in which my body betrays me. Sometimes its outright and blatant, but, sometimes I can successfully accomplish something only to be hit with something called Post-Exersion Malaise (PEM) later. Also, my pain or fatigue can be so intense it becomes not-so-invisible. You see me in anguish or using mobility aids. But most of the time it is a screaming whisper throughout my entire body. I can hear it, but unless you are really close to me you probably have no idea. (2) The voice of my Jesus. Throughout the hardest days in my life He has always been by side whispering His overwhelming presence and love. You will see his name and presence throughout my journey.

So, this journey is not just about the never-ending pain and fatigue in my journey, but also about the never-ending love and grace of my Lord and Savior, Jesus Christ.

Thanks for joining me in this journey. Please follow the blog (Links at bottom of the page) and check out the information on the “About Chronic Illness” page to start learning more!