Understanding what someone with a chronic illness experiences physically, mentally, and emotionally is impossible unless you also experience the same chronic illness. Its especially difficult when their illnesses are invisible. To help you understand more about some the conditions I deal with on a daily basis, here are some links to help you learn more.
One of my favorite organizations actively researching and working towards finding answers about these very underfunded and misunderstood conditions is the Open Medicine Foundation.
Learn more about Myalgic Encephalomyelitis
Another organization I follow is MEAction. They are a patient network supporting one another and their families. They help mobilize community support, education, activism and advocacy.
Learn more about Myalgic Encephalomyelitis
A documentary created by Jennifer Brea is an excellent way to learn more! The film, Unrest, it documents her journey with ME/CFS and how she connected with other fighters around the world.